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We have an international reputation for undertaking pioneering clinical rare disease research. We work with many stakeholders, including charities, businesses, health organizations, and other universities, in the delivery of effective innovative and research-based solutions.

These partnerships help us accelerate positive change for families, patients, carers, researchers, health care professionals, the local health departments and member charities.

We are particularly grateful to those charities, agencies and organizations who help fund our work.  We thank you.

Alberta University

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Professor Toshifumi Yokota

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Basic Science

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Dr Viktoria Venglovecz

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Dumonceaux Laboratory

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Memorial Sloan Kettering Cancer Center

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MiNA Therapeutics

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Newcastle University

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Queen's University Belfast

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Tours University and Tours Hospital

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University of Liverpool

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University College Dublin

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Charities and Funders

Association of British Neurologists

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ARSLA

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Cystic Fibrosis

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Children’s Cancer and Leukaemia Group (CCLG)

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IICN - Irish Institute of Clinical Neuroscience

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IICN - Irish Institute of Clinical Neuroscience

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TargetALS

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