Rare Diseases
Rare diseases affect around 110,000 people in Northern Ireland. At Ulster University, we work with national and international charities, including the Northern Ireland Rare Disease Partnership, with the vision that no one is disadvantaged because of the rarity of their condition.
Our Aim
Our Ulster-RARE (Ulster University Alliance against Rare Diseases) research teams at Ulster University aim to understand rare diseases through our expert knowledge, research, and first-class facilities, with the goal to improve the quality of life, treatment and care for those impacted by rare diseases in Northern Ireland.
Number of People Affected
30Million in Europe
3.7Million in the UK
110kIn Northern Ireland
1 IN 17individuals are impacted by a rare condition
50%of the patients affected are under 19 years old
6000Over 6,000 rare disorders exist
Work with us
Whether it's new product development, core research, clinical trials, referral pathways or simply a deeper understanding about a particular rare disease, you can engage with the university's researchers and academics to help with tangible issues specific to you.
Find out who to contact and what to do if you want to work with us.
