Family-centred Cancer Care

Ulster University’s ‘Family-centred Cancer Care’ programme of work led by a team of researchers at the Institute of Nursing and Health Research, have developed a range of resources for health and social care professionals, aimed at promoting positive coping when a significant adult has cancer with caring responsibilities for dependent children.

Cancer Conversations: At diagnosis

A culmination of findings from our earlier studies has resulted in the development of an interactive, evidence-based e-learning resource which is freely available online to educate and equip health and social cancer professionals with the essential tools and strategies to support parents when communicating their cancer diagnosis and treatment with dependent children.

Cancer conversations: End of life

Research Publications

1. Semple, C. J., & McCance, T. (2010). Parents' experience of cancer who have young children: a literature review. Cancer Nursing, 33(2), 110-118.
2. Semple, C. J., & McCance, T. (2010). Experience of parents with head and neck cancer who are caring for young children. Journal of Advanced Nursing, 66(6), 1280-1290.
3. O’Neill, C., McCaughan, E., Ryan, A., & Semple, C. (2011). Cancer and fatherhood: an exploration into experiences of fathers diagnosed and living with cancer when they have parental responsibility for children. Journal of Men's Health, 3(8), 235-236.
4. Semple, C. J., & McCaughan, E. (2013). Family life when a parent is diagnosed with cancer: impact of a psychosocial intervention for young children. European Journal of Cancer Care, 22(2), 219-231. 
5. O’Neill, C., McCaughan, E., Ryan, A., & Semple, C. (2013). Fatherhood and cancer: a commentary on the literature. European Journal of Cancer Care, 22(2), 161-168.
6. O'Neill, C., McCaughan, E., Semple, C. J., & Ryan, A. (2018). Fathers' experiences of living with cancer: a phenomenological study. European Journal of Cancer Care, 27(1), e12492.
7. Semple, C., McCaughan, E., & Smith, R. (2017). How education on managing parental cancer can improve family communication. Cancer Nursing Practice, 16(5). 
8. Hanna, J. R., McCaughan, E., & Semple, C. J. (2019). Challenges and support needs of parents and children when a parent is at end of life: a systematic review. Palliative Medicine, 33(8), 1017-1044. 
9. O'Rourke, C., Galway, K., Semple, C., & Ballantine, J. A. (2019). Literature Review and mapping of supportive services for children and young adults experiencing cancer. Report Launch: Literature review and mapping of supportive services for children and young adults experiencing cancer.
10. Semple, C. J., & McCaughan, E. (2019). Developing and testing a theory-driven e-learning intervention to equip healthcare professionals to communicate with parents impacted by parental cancer. European Journal of Oncology Nursing, 41, 126-134. 
11. O’Neill, C., O’Neill, C. S., & Semple, C. (2020). Children navigating parental cancer: Outcomes of a psychosocial intervention. Comprehensive Child and Adolescent Nursing, 43(2), 111-127. 
12. Hanna, J. R., McCaughan, E., Beck, E. R., & Semple, C. J. (2021). Providing care to parents dying from cancer with dependent children: health and social care professionals' experience. Psycho‐Oncology, 30(3), 331-339. 
13. Semple, C. J., McCaughan, E., Beck, E. R., & Hanna, J. R. (2021). ‘Living in parallel worlds’–bereaved parents’ experience of family life when a parent with dependent children is at end of life from cancer: A qualitative study. Palliative Medicine, 35(5), 933-942. 
14. McCaughan, E., Semple, C. J., & Hanna, J. R. (2021). ‘Don’t forget the children’: a qualitative study when a parent is at end of life from cancer. Supportive Care in Cancer, 29(12), 7695-7702. 
15. Hanna, J. R., McCaughan, E., & Semple, C. J. (2022). Immediate bereavement experiences when a parent of dependent children has died of cancer: Funeral directors' perspectives. Death Studies, 46(4), 969-978. 
16. Semple, C. J., McCaughan, E., Smith, R., & Hanna, J. R. (2022). Parent’s with incurable cancer: ‘Nuts and bolts’ of how professionals can support parents to communicate with their dependent children. Patient Education and Counseling, 105(3), 775-780. 
17. Hanna, J. R., & Semple, C. J. (2022). ‘I didn't know what was in front of me’—Bereaved parents' experience of adapting to life when a co‐parent of dependent children has died with cancer. Psycho‐Oncology, 31(10), 1651-1659.
18. Dalton, L. J., McNiven, A., Hanna, J. R., & Rapa, E. (2022). Exploring healthcare professionals’ beliefs, experiences and opinions of family-centred conversations when a parent has a serious illness: A qualitative study. Plos one, 17(11), e0278124. 
19. Hanna, J. R., Rapa, E., Miller, M., Turner, M., & Dalton, L. J. (2022). Conversations about children when an important adult is at end of life: an audit. American Journal of Hospice and Palliative Medicine®, 39(7), 806-811.
20. Sheehan, S., Hanna, J. R., Drury, A., McCance, T., Semple, C. J., & O'Neill, C. (2023, July). A Systematic Review of Educational Interventions to Equip Health and Social Care Professionals to Promote End-of-Life Supportive Care when a Parent with Dependent Children is Dying with Cancer. In Seminars in Oncology Nursing (p. 151474). WB Saunders. 
21. Dieperink, K. B., & Semple, C. (2023, August). Parental Cancer in Young Families-A Unique Opportunity for Family-Centered Care. In Seminars in Oncology Nursing (p. 151485).
22. Hanna, J. R., & Semple, C. J. (2024). Mixed‐methods evaluation of a face‐to‐face educational intervention for health and social care professionals to deliver family‐centred cancer supportive care when a parent with dependent children is at end of life. Psycho‐Oncology, 33(7).
23. Hanna, J., Semple, C., & Strutt, L. (2025). When an adult with significant caregiving responsibilities for children is at end-of-life with cancer: A carer's pre-bereavement and post-bereavement experiences. In K. Jones, & J. Horne (Eds.), Understanding the Grief and Loss Experiences of Carers (pp. 94-109). Routledge. Advance online publication.
24. Semple, CJ., O’Neill,  C., Sheehan, S., McCance, T., Drury, A. and Hanna, JR. (2024) An eLearning intervention for professionals to promote family-centred cancer care when a significant caregiver for children is at end of life: a mixed methods evaluation. J Med Internet Res (forthcoming).

Funding

• 2007 Action Cancer £10,000
• 2012 Cancer Focus NI £3,000
• 2014 HSC R&D  £83,354
• 2015 HSC R&D £9,000
• 2017 Ulster University £25,000
• 2021 Ulster University ECR Impact Fund £4,875
• 2021 ESCR Festival of Social Science £600
• 2022 Connected £10,000
• 2022 HEA North South Research Programme Grant €198,519
• 2023 Connected £2,000
• 2023 Connected £2,000
• 2023 Martha McMenamin Memorial Scholarship £2994
• 2024 Ulster University Impact Funding £4000
• 2024/2025 Ulster University Research Impact Fund £4,000

In the Media

• Don’t forget the children: Slugger O'Toole
• Research Findings Announcement: Ulster University
• A qualitative study when a parent is at end of life from cancer: ehospice
• Children have a right to be involved” in conversations around the death of a parent: Marie Curie
• New guide to help healthcare professionals support terminally ill parents to speak to their families: Kings College London
• Study Confirms that Children of Cancer Patients are Too Often Excluded from the Disease Journey: Onco'Zine

Key contributing researchers

• Late Prof Eilis McCaughan, Professor in Cancer Care, Ulster University
• Prof Tanya McCance, Mona Grey Professor of Nursing Research & Development, Ulster University
• Dr Jeff Hanna, 'Lecturer in Clinical Cancer Nursing' with affiliations of 'Ulster University / South Eastern Health and Social Care Trust', Ulster University
• Dr Carla O’Neill, Lecturer / Assistant Professor School of Nursing, Midwifery & Health Systems, University College Dublin